Older people can so quickly find that negative labels are
pinned on them. They are labelled as
exhibiting challenging behaviour, defined in my terms as shouting, abusive
language, and sometimes unnatural physical strength. In the majority of people these behaviours
are known as anger and aggression but in residential settings everything
ordinary changes as a medical approach takes over. Residential settings provide an environment where
every day seems the same, where people cannot remember the day, the date and
time, where activity is inactivity, where there is nothing in common with the
strangers sitting either side and the staff supporting them are strangers; where
the television blasts out its repetitive messages displaying indecipherable pictures,
where a radio pumps out songs with no distinguishable words, often competing
with the television clangour at the same time.
It seems that coming from the outside into this environment and
atmosphere where ‘one size fits all,’ older people display amazing resilience with
the ability to survive in this bizarre and bewildering artificial world.
So
am I being over the top, who am I to say how it is?
First of all I have first-hand lived experience, not just
of one setting but of many. Secondly, I am
privileged to have the professional position to visit a wide variety of residential
settings where similar situations are witnessed over and over again. Put twenty to thirty people in a
multi-purpose room, create all of what has been described above, and you are
transported into a very depressing and overwhelming environment. Add to this experience overpowering heating
levels where to feel fresh air on ones’ face is a rare or non-existent
occurrence. It is not difficult to
restrain people. Turn up the heat on people
who have lived long and who have reached a point in life where losses
experienced are multiplied several times over and often occur simultaneously,
drown out the sadness with a cacophony of sound and the one thing in your
control is to exert ‘challenging behaviour,’ or fall asleep. Add to
this a time in life where the bladder weakens, more toilet visits are required
and while there is a desperate need for a second cup of tea, and where the fear
is that even one cup of tea will demand a trip to the toilet the result is that each
day is spent in constant worry. The concern
is that an accident is likely to occur and one will be labelled ‘demanding,’ ‘selfish,’ inconsiderate of others
and to ring that bell for help is one ring too many.
If you feel the scene is too unbearable, maybe it is because
you have been in that difficult position yourself or have spent time agonising
over finding a setting for a relative or friend. It can be an agony or it can be a relief when
you find a setting that ticks most of the boxes.. Whatever the emotions, it is not you that
will live in that setting. There are
instances where relatives or guardians weald the ultimate power of denying a
resident any outside contact. And this is their home!
Restraint is often applied when it is deemed a person
will get up from their armchair unaided or want to wander outside. Let me pause a moment. How often do you get up out of bed or from a
chair without thinking, arrange to do things outside the home, visit friends,
see a film? The thought of being restrained, conforming to
a timetable that never varies, having to ask people for help whose names cannot always be remembered, especially when
people are engaged for a day from an agency, it would make anybody want to give
up the fight. The more so with a lack of
continence support, a lack of refreshment when one feels like it, and the
constant blare of television and radio and people trying to make themselves
heard and understood.
‘Restraint,’ ever a threat but more a reality. ‘Challenging
behaviour’ – bring it on!
Ann Macfarlane
Always looking for the positives.
PS: There
are occasions where residential settings provide quality services, where older
people are treated with respect and dignity, are listened to and requests acted
upon, but the bar has to be raised. I am
the first to acknowledge where I see good practices and a willingness to learn.
PPS: Visiting a friend in hospital yesterday, a
patient got out of the armchair. ‘Oh,
I’m stiff, I’ve sat too long.’
Nurse: ’ Sit down, don’t wander off.’
Patient: ‘It’s
good to stretch one’s legs, take exercise, I was just going to look out of the
window.’
Nurse: ‘Sit down,
I need to see where you are. Don’t move.’
Life is rarest thing in the world. Care and love make the life beautiful.People realize life when they need a care and look for lift and expect to stay with them through everything. We wanted to be with the people who wants care and wanted to see the happiness in their faces.
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