Ann Macfarlane OBE

Ann Macfarlane OBE

Friday 18 October 2013

Transforming the crumbling built environment. Part Two.



This blog follows on from the one written on subtle abuse and difficulties that exist in the environment for all people, but are a barrier for disabled people.  In order to improve facilities and services, the minimum action is for councils to appoint well-trained access officers.  Access officers have diminished or become non-existent as councils struggle to balance their books. This is a false economy as councils now lack professional expertise in this area; with no-one experienced in giving advice to councillors around the barriers that cause many disabled people to remain marooned in their home environment.  
 
Barriers in the home greatly affect wellbeing.  Access officers understand planning applications in terms of the law and regulations.  Their advice is critical if errors are to be eradicated at the design stage.  When applications go through that fail to address access issues, it results in discrimination, violation of people’s human rights, and involve councils and health authorities in further financial expenditure.  Worst of all is that some mistakes cannot be rectified and they mean that disabled people may have no access to facilities and services that they are entitled to - and dependent upon. 

Apart from the appointment of access officers, there is a need for access groups to be independently managed and controlled by well-trained disabled people.   Access groups provide advice and expertise to access officers, councillors and senior health professionals.  In this way access for all people will be free from the barriers that currently exist and that are deteriorating because of the lack of this input to their commissioning programmes. 

Disabled peoples’ lives should not be totally reliant on health and social care but must cover access issues that arise in all statutory and voluntary organisations.  In this way people who work in these sectors will be far more knowledgeable and start to take responsibility for their day-to-day working practices and policies. 

In 1981, International Year of Disabled People, there was a shift in thinking within local councils and, slowly, environmental access was improved.  Now time has passed, and many older disabled people who worked tirelessly to progress access, no longer have the energy and resources to start all over again.  Younger disabled people have greatly benefited from improved access and they now need to get involved.   Younger disabled people can work, shop, visit refreshment outlets, and enjoy leisure pursuits, albeit not in entirely accessible environments.

Now economic pressure is building, environment access is crumbling, buildings need repair, potholes and cracks in our roads and pavements appear daily, bushes and trees overhang and make it even more difficult for people with visual impairments and learning difficulties to move freely.  Younger disabled people, with support from those with experience, must come together to discuss and take action.  Councils must see it as a civil right for its citizens to have access to facilities and services.

One group of young disabled people from an Organisation called Young, Disabled and Positively Artistic (YADAPA), who have had opportunities to engage in dance, drama, art and craft discuss their environment and how it affect them.  After six years of pleasure and learning, they are becoming ‘political.’   Many in early adulthood want their opinions heard.   The initial idea was for them to have a voice and now the time has come for them to take responsibility, and with improved confidence, speak out in whatever way they can manage to.  Stephen Hawkins has made his ‘voice’ heard, so can they!  

Ann Macfarlane
October 2013

About Ann MacfarlaneOBE

Ann became a trustee at the Social Care Institute for Excellence in 2007. Ann, a wheelchair user, is a leading Disability Rights and Equalities Consultant, focusing on health and social care as it affects disabled adults, irrespective of age. She specialises in Independent Living, Direct Payments and Personal Budgets, and has been involved in the UK disabled peoples' movement for many years. Ann is an 'expert by experience' for the Care Quality Commission, and works with the Department of Health, the NHS and other national Organisations. She is recognised in her community and is a member of the Local Authority's Safeguarding Board, chair of their Users Adults at Risk Group and the local Patient-Wide Forum. She is Patron of Kingston Centre for Independent Living. Ann has lectured worldwide on health and social care. Ann received her MBE in 1992, and an OBE in the Queen’s Birthday Honours in 2009. She was also awarded a Paul Harris Fellowship. Ann has particular responsibilities in her local United Reformed Church and enjoys photography, travel, art and gardens.