Ann Macfarlane OBE

Ann Macfarlane OBE

Tuesday 15 April 2014

Assisted Dying - Airbrushed out of Society



Currently making its way through the House of Lord’s is Lord Falconer 's legal efforts to relax the existing legislation on the Assisted Dying Bill which is likely to receive a second reading in the Lords shortly.  Enough 'Yes' votes will enable it to proceed to the Commons before the summer recess and already this amendment feels like an unstoppable tide.

I have just come from a meeting of the local Disabled Peoples' Organisation where self-directed, Independent Living support was discussed.  At the end of the meeting I presented the proposed amendment to the existing Bill's legislation after which I boarded a bus. 

During the bus journey I sat in the allocated space for wheelchair users when, to my disgust, I noticed that the wheelchair symbol had a sticky note placed across it completely blocking it out.  I felt the hatred expressed in this simple action.  As a disabled person this obliteration of the sign gave a strong message that disabled people are a waste of space (literally). I felt I had been not only airbrushed out of the local community but out of society. It led to deeper feelings that if a person could so easily eradicate the symbol they could eradicate me and other areas of my life where they view disabled people as economically too costly, where disabled people are not worthy of housing, work, food, recreation, relationships or practical support.  I felt sick. It made me realise even more strongly how the extension to the existing Assisted Dying Bill will risk disabled and older people experiencing depression or worse. And this is without them having to stump up money for ever-increasing financial contributions towards their care packages in order to stay alive. 

It is known that Independent Living and a future worth living continue  to remain a pipe dream for the majority of disabled people, irrespective of age.  It is recognised that when someone is labelled ‘severely’ disabled and depression establishes itself, it is relatively easy to be coerced into thinking about ending one’s life and for media remarks such as ‘we (presumably meaning the public) cannot financially support the growing numbers of older people.’   Thoughts and messages can get compounded and it does not take long for a disabled or older person to make a decision that they may not live to reverse.  What a disabled person may think and feel one day can be totally different the next day so it is important to understand the implications of this extension to the Assisted Dying Bill.   The piece of paper covering a symbol on the bus can easily be removed, but it does not eradicate the feelings that may result in the serious decision to end one’s life.  This decision may not be so easy to change and neither will an extension to the Bill.

Go to the 'Not Dead Yet' website for information, updates and petition to the amendment on the Assisted Dying Bill. 

About Ann MacfarlaneOBE

Ann became a trustee at the Social Care Institute for Excellence in 2007. Ann, a wheelchair user, is a leading Disability Rights and Equalities Consultant, focusing on health and social care as it affects disabled adults, irrespective of age. She specialises in Independent Living, Direct Payments and Personal Budgets, and has been involved in the UK disabled peoples' movement for many years. Ann is an 'expert by experience' for the Care Quality Commission, and works with the Department of Health, the NHS and other national Organisations. She is recognised in her community and is a member of the Local Authority's Safeguarding Board, chair of their Users Adults at Risk Group and the local Patient-Wide Forum. She is Patron of Kingston Centre for Independent Living. Ann has lectured worldwide on health and social care. Ann received her MBE in 1992, and an OBE in the Queen’s Birthday Honours in 2009. She was also awarded a Paul Harris Fellowship. Ann has particular responsibilities in her local United Reformed Church and enjoys photography, travel, art and gardens.