Ann Macfarlane OBE

Ann Macfarlane OBE

Saturday 28 February 2015

Cash for Care: different language; different entitlements?

Cash for Care:  Changing language; different entitlements?

What began as a simple concept years ago has changed into a nightmare for statutory health and social care budget holders, commissioners, operational staff and people who may need or who already use health and social care services.  The concept focused on ‘cash for care’ that could be controlled by people who needed support to take control of life rather than have their care arranged by their adult social care department or an agency.  The term used in the 1996 Community Care (Direct Payments) Act was ‘direct payment.’  Now, years later, there are four terms to describe payments that can be made to an individual.  They are: ‘direct payments,’ ‘personal budgets,’ ‘personal health budgets’ and ‘continuing health care.’

Attached to each term are different community and health care assessment forms each with different criteria that, if eligible under the Act, entitle a person who needs support to various ways in which to have their needs met.  They can either have a cash payment, or a mixture of cash from the adult social care budget, or cash and services, or even money from a pooled health and social care budget or separate funding from health and social care and direct services and equipment.  They may also be eligible for funding from other agencies, such as education or access to work.  Alongside the community care assessment form is a financial assessment form to be filled in.  These forms are complex, difficult to understand, and often require a degree in mathematics!   Each authority has a different set of disability related expenses that can be disregarded and many local authorities expect service users to pay the full 100 per cent cost of their care package.

Local authority and health boards, commissioners and operational staff  struggle to provide this complex information to the public and to service users and in trying to deliver care packages that encompass ‘cash for care,’ generally find it too daunting.  It is easier for care managers and other professional people to offer traditional services, reducing in number with decreased statutory funding, as these are few and readily explained and coded under the plethora of budget headings generated by health and local authorities.

If you have got this far and are confused, don’t think it is any intellectual lack on your part, the paperwork attached to acquiring cash for care is confusing.  It stops people entering the health and social care systems and leaves people who require support feeling depressed, lacking self-worth and with little or no idea of entitlements they might expect within these systems.   The terminology used to describe entitlements amount to the same thing, ‘cash for care.’  What has happened is that by making the language difficult to penetrate, a whole industry has built up around it, creating an increase in senior management and a vast amount of unnecessary bureaucracy and waste.  The straightforward answer is; one pot of money, one integrated set of criteria for a self-and community care assessment, one financial assessment form simply explained or done away with as the vast resources needed to generate income could be used to create more integrated care packages.  

Finally, with the centrally Government -funded Independent Living Fund being phased out in the next few months and the money, non-ring-fenced, being transferred to local authorities, it is not difficult to imagine the difficulties that will be experienced by existing uses of that Fund.

What is happening in Manchester also cannot be ignored.  What we need to be vigilant about is the lives of service uses becoming even more medicalised than they already are in many situations.

Ann Macfarlane
February 2015





About Ann MacfarlaneOBE

Ann became a trustee at the Social Care Institute for Excellence in 2007. Ann, a wheelchair user, is a leading Disability Rights and Equalities Consultant, focusing on health and social care as it affects disabled adults, irrespective of age. She specialises in Independent Living, Direct Payments and Personal Budgets, and has been involved in the UK disabled peoples' movement for many years. Ann is an 'expert by experience' for the Care Quality Commission, and works with the Department of Health, the NHS and other national Organisations. She is recognised in her community and is a member of the Local Authority's Safeguarding Board, chair of their Users Adults at Risk Group and the local Patient-Wide Forum. She is Patron of Kingston Centre for Independent Living. Ann has lectured worldwide on health and social care. Ann received her MBE in 1992, and an OBE in the Queen’s Birthday Honours in 2009. She was also awarded a Paul Harris Fellowship. Ann has particular responsibilities in her local United Reformed Church and enjoys photography, travel, art and gardens.